Advanced Search

Journal Navigation

Journal Home

Subscriptions

Archive

Contact Us

Table of Contents

CiteULike is a free service for managing and discovering scholarly references - click here to get started.

Sign In to gain access to subscriptions and/or personal tools.
Journal of Family Issues
This Article
Right arrow Full Text (PDF)
Right arrow References
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Right arrow Citation Map
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Alert me to new issues of the journal
Right arrow Add to Saved Citations
Right arrow Download to citation manager
Right arrowRequest Permissions
Right arrow Request Reprints
Right arrow Add to My Marked Citations
Citing Articles
Right arrow Citing Articles via HighWire
Right arrow Citing Articles via Google Scholar
Right arrow Citing Articles via Scopus
Google Scholar
Right arrow Articles by Leiter, V.
Right arrow Articles by Wells, N.
Right arrow Search for Related Content
Social Bookmarking
Add to CiteULike   Add to Complore   Add to Connotea   Add to Del.icio.us   Add to Digg   Add to Reddit   Add to Technorati   Add to Twitter  
What's this?

The Consequences of Caring

Effects of Mothering a Child with Special Needs

Valerie Leiter

Simmons College

Marty Wyngaarden Krauss

Brandeis University

Betsy Anderson

Family Voices at the Federation for Children with Special Needs

Nora Wells

Family Voices at the Federation for Children with Special Needs

This article broadens our knowledge about family caregiving across the life course by examining caregiving and employment effects experienced by women with children with special needs, using data from a survey conducted in 1998-1999. Almost one fifth of the mothers provide at least 20 hours a week of home health care to these children. More than half of the mothers in the labor force report an employment effect in the form of reducing their hours, and more than half of the mothers at home full-time report ceasing paid employment due to their children’s needs. Experiencing these effects was most strongly associated with the child’s health characteristics. The caregiving provided by mothers of children with special needs occurs at a formative stage of their lives and may be intense and of long duration. These mothers’ experiences should be included in the current research and theories about family caregiving across the life course.

Key Words: family • children • caregivers • chronic illness • disabilities

Journal of Family Issues, Vol. 25, No. 3, 379-403 (2004)
DOI: 10.1177/0192513X03257415
Add to CiteULike CiteULike   Add to Complore Complore   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us   Add to Digg Digg   Add to Reddit Reddit   Add to Technorati Technorati   Add to Twitter Twitter    What's this?


This article has been cited by other articles:


Home page
 Qual Health ResHome page
S. Wongvatunyu and E. J. Porter
Helping Young Adult Children With Traumatic Brain Injury: The Life-World of Mothers
Qual Health Res, August 1, 2008; 18(8): 1062 - 1074.
[Abstract] [PDF]

Home page
 Journal of Family NursingHome page
T. B. Rampton, J. L. Rosemann, A. L. Latta, B. L. Mandleco, S. Olsen Roper, and T. T. Dyches
Images of Life: Siblings of Children With Down Syndrome
Journal of Family Nursing, November 1, 2007; 13(4): 420 - 442.
[Abstract] [PDF]

Home page
 Gender SocietyHome page
L. M. Blum
Mother-Blame in the Prozac Nation: Raising Kids with Invisible Disabilities
Gender Society, April 1, 2007; 21(2): 202 - 226.
[Abstract] [PDF]

Home page
 Qual Health ResHome page
J. H. Lassetter, B. L. Mandleco, and S. O. Roper
Family Photographs: Expressions of Parents Raising Children With Disabilities
Qual Health Res, April 1, 2007; 17(4): 456 - 467.
[Abstract] [PDF]

Home page
 J Law Med EthicsHome page
P. M. Minihan, S. N. Fitch, and A. Must
What Does the Epidemic of Childhood Obesity Mean for Children with Special Health Care Needs?
J. Law Med. Ethics, March 1, 2007; 35(1): 61 - 77.
[PDF]

Home page
 Gender SocietyHome page
J. Litt
Women's Carework in Low-Income Households: The Special Case of Children with Attention Deficit Hyperactivity Disorder
Gender Society, October 1, 2004; 18(5): 625 - 644.
[Abstract] [PDF]